- Formato: Edición Kindle
- Tamaño del archivo: 22535 KB
- Número de páginas: 368
- Editor: Gillette Children's Healthcare Press (12 de abril de 2020)
- Vendido por: Amazon Mexico Services, Inc.
- Idioma: Inglés
- ASIN: B0857KS1GZ
- Texto a voz: Activado
- Word Wise: No activado
- Opiniones de los clientes: 14 calificaciones de clientes
Opciones de compras
Spastic Diplegia--Bilateral Cerebral Palsy: Understanding the Motor Problems, Their Impact on Walking, and Management Throughout Life: a Practical Guide for Families (English Edition) Edición Kindle
Precio de Amazon
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Descripción del producto
"This book provides the answers we have all been looking for ... the perfect balance of science and practical knowledge ...With a resource of this quality, the future is bright for all of us."
--Dr. Linda A Hallman, parent of teenager with spastic diplegia, Director of Orthodontics, Children's National Medical Center, Washington DC
"Spastic Diplegia-Bilateral Cerebral Palsy is a must-read for parents of children with spastic diplegia, and if its guiding principles are followed, it will do much to ensure that their particular child reaches maturity with an optimal outcome."
--Dr. James R. Gage, MD and past president of the American Academy for Cerebral Palsy and Developmental Medicine
"This book is excellent, insightful, and educational: it will open minds and touch hearts. It is very clear and easy to read. As an adult with spastic diplegia, I have learned many new things about my condition from reading it."
--Samantha Marie Lademann, adult with spastic diplegia, Minnesota, USA
"This co-developed parent-professional book on the focused topic of spastic diplegia is a must-read for professionals, parents, and the individual with cerebral palsy (CP). The range of the book is "real-world focused" with the latest accurate literature incorporated ... It serves a unique educational niche ... I am recommending it already!
--Dr. Deborah Gaebler-Spira, MD and Director Cerebral Palsy Program, Shirley Ryan AbilityLab
"As a pediatric orthopedic surgeon who specializes in the care of children and adults with CP, as well as being the father of a 37-year-old man who has CP, I highly recommend this book to people who have CP, parents, family members and medical professionals."
--Dr. Hank Chambers, MD and Professor of Clinical Orthopedic Surgery, University of California
"This book provides a comprehensive overview of all aspects of living with bilateral spastic CP ...The combination of evidence-based information and personal experience ensures that this book is an engaging and thought-provoking read, which families and health professionals would benefit from owning."
--Dr. Jennifer Ryan, Research Lecturer, Royal College of Surgeons in Ireland, Dublin
Biografía del autor
Detalles del producto
Opiniones de clientes
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Principales opiniones internacionales
Ann Jenkinson (Physiotherapist)
Ex Manager Gait Laboratory CRC
As a non medic it seems there is nothing you can do. The worst possible outcomes are foremost in your mind.
Lily's Book helps you to face the fear. Tommy's Story is inspirational. I have to admit the title of the book scared me a bit I thought it would be too Technical. I actually read all the pink boxes first-Tommy's personal journey, from the time they got the news that their beautiful child had CP. The family rose to the challenge. Solutions were found to every new problem that spastic diplegia threw at him during childhood and adolescence and Tommy was empowered to become the Independent young man he is today. Every parents dream.
It was also interesting to read other peoples stories. This book gives everyone the benefit of one woman's amazing research into Spastic Diplegia Bilateral Cerebral Palsy. I think it is an inspirational handbook for any person with this condition. It is written in a way that, every parent, grandparent, or friend of someone with this condition could read and use as a reference book . A MUST READ for medics as well to understand the parents and child's point of view.
The dept of understanding of the author (as she is a parent herself) is papalibe throughout the book.One of the most outstanding achievement of this book in my opinion is how the clinical condition and the advice for life are delivered in a manner that is accessible to all.I couldn't praise this book enought and what a gift the author has brought to the world of cerebral palsy, spastic diplegia through her indept understanding, incredible insight and vast clinical knowledge and expertise.
The book finishes with a touching epilogue written by Tommy, the young man who inspired the book.
It’s also a guide to the many people they will meet along the way, as they build relationships with multidisciplinary teams, and step into their new role as owners of the condition on their child’s behalf.
The book gives a comprehensive account of the gold standard for management and treatment from birth into adulthood, written in collaboration with leading specialists in the field. The scientific and medical detail is rigorously researched, then brought to life with the warm perspective of a parent describing 25 years of navigating daily life and treatment options with her own son. The author explains how her own understanding developed over time, and how she learned to work with doctors, therapists, and others (both in Europe and the U.S.) on her son’s path to self-management. Each chapter is detailed, accessible, empowering, and never dumbed down.
We haven’t seen a handbook like this before, connecting what academics and specialists know about spastic diplegia with a perspective on the child (and adult’s) real life at each stage. It’s the work of a scientist, parent, and practical optimist, sharing the kind of knowledge that can transform lives if it lands in the right hands at the right time. Reading it, you realize how many other complex conditions call for a book like this.